Re: Writing about Depression
Posted by: Anonymous User (---.in-addr.btopenworld.com)
Date: July 20, 2003 10:40PM
Humilitas ---
My little boy is eight today. He has had such a difficult life, and though one wants to say so much more about him, the simple word 'autustic' gets you there fastest. He very rarely talks. But he is lovely, in his own special way.
I also have a daughter who is nine and a half. She has been absolutely fantastic with him, but then she can remember him as a baby of tremendous promise, and who she was very excited about when he was born. I have often been grateful that she was born first, as it must be very difficult to come after an autistic child.
I think it's brilliant that you can talk about your difficulties relating to your sister. It's hard to be honest about these things, and it is such a strain; not to be able to help (it seems), ones' best efforts making no difference (we think), there being no hope for the future (we fear). And with about one in fifty boys (girls with autism are relatively rare, though that's not a suggestion of a wrong diagnosis) considered autistic in the UK, the army of those needing to care for them is becoming huge. Whenever I mention my sons' autism, there is always someone there who has an autistic child in their family or whatever, it is frighteningly common today.
When he first had symptoms, and became withdrawn, the first advice was that it might be a degenerative brain disease, and he might slip away into cabbagedom. That was one of the most frightening moments of my life. Both I and my ex wife experienced the temptation to abandon him. To be tempted is not to do something; but the feelings had to be faced.
My daughter is almost unfailingly kind and understanding, and I always make sure she knows that I am particularly proud of her for that --- and of course for other things. I also tell myself that when you take his diagnosis into account, my son is probably the nicest little boy you could ever find. He is happy to run around and giggle and play his own games, whereas I think for a lot of similar diagnoses it's shout at the wall all day. So I am, in quite a different way, proud of him, too. And I find that whenever I treat his behaviour as normal in public (as it is, in a way, for him) it embarasses no one.
I look at my son as the result of a process; every generation of my fathers' family has had an increasing tendency to be shy and withdrawn. 43 years of fighting against the tide means you would probably be surprised by this if you met me. But how can I complain if my son is more me than I am?
It's a pity that I cannot have my children stay with me separately more often, because it is difficult to do the best for both of them at the same time. But the funny thing is that whenever one of the children comes alone, it just doesn't feel right. We are a unit. Fortunately it seems that my daughter is perfectly OK with other children, and has not become in any way limited when with them as a result of all the sacrifices needed to suit her brother.
Anyway, nothing above was meant critically, I'm just swapping experiences.
BTW, Dustin Hoffman or what!!!